Tonight was my last IV for the first week. Every week I will
need to have a new port needle put in. What this means is the current port
needle will have to be de-accessed, and then my port re-accessed with a new
needle. Luckily I de-access myself, but don’t know how to re-access myself yet.
Eventually Amanda will learn to access it so that will eliminate the need for a
home health nurse weekly. I will still need one bi-weekly to draw blood labs to
check kidney functions etc.
After my IV tonight I de-accessed my port. That will give me
almost 24 hours needle free before the home health nurse comes to re-access me.
When I am de-accessed I can take a shower without worrying about covering my
port and making sure moisture doesn’t get in. I can clean my skin where the
tegaderm was and sit in the hot water longer. This is nice because when I have
to cover my port to shower it limits what I can do and makes it harder to
shower. I feel clean.
After a week of antibiotics I am starting to feel better. I
am a little more tired, but at least I feel better. I have not had a lot of bad
side effects from the antibiotics, and I keep praying that I wont. After doing
my IV every night, I am a little bit nauseated, but not bad at all. I have not
had to use my anti-nausea meds, which is good.
Yesterday was the Williamson County Great Strides Walk. My
team Bad to the Boone raised around $5000 if not more, and the walk exceeded
our goal. I wish my team was bigger, but it gives me a goal to reach next year.
With everything going on this year I did not have the time I have in the past
to put together a team and manage it. I did exceed my goal for fundraising, so
next year I will raise the bar.
Today Amanda and I met Sierra, Tory and Logan at the house
and picked up our washer and dryer, so we can finally wash clothes at the
apartment. After unloading the washer and dryer we went and picked up our new
couch. It was good seeing Sierra, Tory and Logan, and nice of them to help us
out.
Our apartment is coming together quite nicely. It’s not the
house, but we are making it home. I miss my neighbors and the quiet of Hutto,
but I love being in Austin with plenty of places to go and more things to do. We don’t have to worry about what we are
going to eat dinner if we forget to take something out, and on the weekends if
we forget to get breakfast stuff, there are plenty of places to eat breakfast
food.
Now off to finish treatments and get some sleep. Another
week starting tomorrow, hopefully I can get some rest and not wear myself out.
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