A little about us...

My name is Ryan and my wife's name is Amanda. We are just two people with a lot in common that fell in love. Just so happens that one of those commonalities is Cystic Fibrosis (CF). We are breaking all the rules with being together, but love knows no boundaries.

Amanda and I met a few years ago at a CF walk kick-off event. Who knew our path's would cross again.

I was going through a rough time in January 2012, and a friend of ours mentioned to Amanda that I might need someone to talk to. Being the caring person she was, she contacted me to talk. We had an instant connection. She had previously gone through what I was going through, and was there to lend an ear. We started talking more frequently and feelings started developing. When we saw each other, there was a feeling that we had never felt before, almost like in the movies, love at "first" sight. Our friendship was stronger than ever and with feelings developing stronger and stronger every day, we decided that we had to make a hard decision. Being that we both had CF we had to decide where this relationship was going, did we want to take it to the next level, or was it going to end at just being friends. After a little time we both decided we were ready to take it to the next level. There was no turning back. We were in love, and took our last first kiss.

Monday, October 15, 2012

1st night


Tonight I started my IV that I will be on for a year. I guess it didn’t really hit me how hard it is going to be to do antibiotics and a IV every day at the same time, cover my port everyday for a shower, access and de-access my port weekly, change my dressing weekly, get blood drawn bi-weekly, make sure I’m not having any symptoms or side effects, and make sure I’m not eating anything that would react with the antibiotics.

After I started the IV tonight I only felt a little nauseated. Once my body gets used to the meds I should be fine. If I do get more nauseated the doctor gave me some medicine to help with it that won’t knock me out at the same time. I pray that this treatment works, and that I don’t have to switch things up. The doc said this was the easiest thing to start out with, so hopefully it works. I can’t imagine doing more antibiotics or more times a day than this.

My home health nurse was really cool. It really makes a difference in your care when you have someone you like. It doesn’t matter how good a nurse is, if you don’t like them, its still not good care. If they don’t have compassion and sympathy then it makes a world of difference.

I will be tough, I will do what I have to do, and I will kick this. No matter how hard it will be, I have the best friends and family to help me get through this. I have the last name that proves to be strong and hardheaded. 
Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)