A little about us...

My name is Ryan and my wife's name is Amanda. We are just two people with a lot in common that fell in love. Just so happens that one of those commonalities is Cystic Fibrosis (CF). We are breaking all the rules with being together, but love knows no boundaries.

Amanda and I met a few years ago at a CF walk kick-off event. Who knew our path's would cross again.

I was going through a rough time in January 2012, and a friend of ours mentioned to Amanda that I might need someone to talk to. Being the caring person she was, she contacted me to talk. We had an instant connection. She had previously gone through what I was going through, and was there to lend an ear. We started talking more frequently and feelings started developing. When we saw each other, there was a feeling that we had never felt before, almost like in the movies, love at "first" sight. Our friendship was stronger than ever and with feelings developing stronger and stronger every day, we decided that we had to make a hard decision. Being that we both had CF we had to decide where this relationship was going, did we want to take it to the next level, or was it going to end at just being friends. After a little time we both decided we were ready to take it to the next level. There was no turning back. We were in love, and took our last first kiss.

Tuesday, October 16, 2012

CF Clinic w/ Mom


Today was CF clinic day. My appointment was at 8:30 at dell children’s specialty care center. This was a big appointment, not only was it the follow up to go over my visit with Dr. G, my mom was going. It has been about 6 years since she has been to an appointment with me. I was hoping it would be a reality check for her.  I have had a lot of trouble over the past couple years getting her to understand what I am going through, and what I need to do for my health. With the help of the Dr. and nurse hopefully she will see it from a different view.

I am a very active CFer. I don’t want to be held back just as much as the next person, and I do what I can to avoid it. I have gotten to the point in my health that if I don’t change things, at least a little, my health is going to get worse instead of better. I have worked full time since I graduated high school. I don’t know what I would do if I didn’t work full time, but I am starting to think full time is going to hurt me in the long run. Mentally I can’t stop working all together, but I should start a little at a time for my health.

Over the past year I have started trying to rest more, now its time I start making time to work out or get exercise as well as rest. It would benefit my health greatly if I could do that. Over the next few weeks I should be fully moved in to the apartment, so I can finish getting the house ready to rent it out. Once I get the house rented out, I will have a lot less stress to deal with. Then I can get my workout equipment moved into the apartment, my desk set up so I can work from home, and figure out the best schedule for me.

I started my IV treatment last night, and tonight did my second dose of IV tygacil. So far so good, keep the prayers coming; I know this is going to work. Also while at my dr. appointment I learned that I do not have to avoid the foods that I thought I was going to have to. As long as I am not consuming large amounts of them I will be ok. My weight is up, my pft’s were up, and my trends are in an upward slope. Slight, but still an upward slope.

I am going to take this day by day; I think its best for my anxiety. No point and worrying myself to death, its in God’s hands now. 
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