A little about us...

My name is Ryan and my wife's name is Amanda. We are just two people with a lot in common that fell in love. Just so happens that one of those commonalities is Cystic Fibrosis (CF). We are breaking all the rules with being together, but love knows no boundaries.

Amanda and I met a few years ago at a CF walk kick-off event. Who knew our path's would cross again.

I was going through a rough time in January 2012, and a friend of ours mentioned to Amanda that I might need someone to talk to. Being the caring person she was, she contacted me to talk. We had an instant connection. She had previously gone through what I was going through, and was there to lend an ear. We started talking more frequently and feelings started developing. When we saw each other, there was a feeling that we had never felt before, almost like in the movies, love at "first" sight. Our friendship was stronger than ever and with feelings developing stronger and stronger every day, we decided that we had to make a hard decision. Being that we both had CF we had to decide where this relationship was going, did we want to take it to the next level, or was it going to end at just being friends. After a little time we both decided we were ready to take it to the next level. There was no turning back. We were in love, and took our last first kiss.

Monday, June 2, 2014

Still breathing...

So it's been over a year now. Long story short: after 8 1/2 months I developed peripheral neuropathy in my feet,  they took me off Zyvox after a lot of tests trying to figure out what caused the neuropathy and determined it was the culprit. They put me on inhaled Amikacin for the remaining 3 1/2 months.

At 11 months and a few days I was allowed to stop treatment. 3 days before Amanda and mine wedding day I was able to de-access my port and be free from antibiotics for mycobacteria.

Now a year from developing peripheral neuropathy I still have it. Uncomfortable,  tingling, numbness and painful sensations in both feet from the ball to the tip of my toes. I have no way to get relief and no idea if it will ever go away, but it was worth getting rid of the mycobacteria.

All of that and I'm still breathing,  God is good!

Posted by at

2 comments:

  1. UnknownJune 3, 2014 at 8:39 AM

    Hey I was reading a article yesterday about Peripheral Neuropathy, and I said something about Cipro as well, but hey im so happy ur nasty bug is gone. im glad ur doing well :)

    ReplyDelete
  2. UnknownJune 3, 2014 at 9:07 AM

    Anytime you use an antibiotic long term there is bound to be "long-term" side effects that aren't in the normal side effects on the label, just unfortunate that the doc didnt research as soon as I called when it was just my left big toe, by the time they figured it out it had spread to both feed up to the ball of my foot. I have weird sensations all the way up to my ankles though, but not the numbness or painful sensations.

    ReplyDelete

Subscribe to: Post Comments (Atom)