So today I had a CF Clinic appointment…at 8am in the
morning. CF clinic that early almost never is as good as it could be. I didn’t
sleep well last night, woke up multiple times, and woke up before my alarm this
morning. Even though I woke up early, I still ran out of time. I left with 20
minutes to get to CF clinic. The weather was wet, cold, and just bad
altogether. Traffic was horrible, so it’s good I drive a fit. I got to CF
clinic about 5 minutes after the hour, so was a little late, but not compared
to anyone else cause of the weather.
My vitals were good, weight is up, and pft’s are normal. I spoke with
the doctor and no changes were made to my care. Spoke with the social worker
and decided to research more techniques to help with my anxiety.
All in all was a pretty good appointment, just not what I
expected. What I mean by not what I expected is referring to my pft’s. I don’t
understand how I can feel good lung wise, but pft’s aren’t up higher. I have
been on antibiotics for 3 months now and feel really good lung wise. I guess I
had my hopes up that since I feel better that my lung functions would also be
improved. I realize today what people are talking about when they say “don’t go
by the numbers, go by how you feel.” I feel good and that’s what matters.
On a side note, with seeing the doctor, nurse, social
worker, respiratory therapist, getting blood work and x-rays I more than met my
deductible at this appointment. Helps relieve my anxiety a bit knowing that
once these claims go through and I meet my pharmacy out-of-pocket my insurance
should pay 100% the rest of the year.
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