A little about us...

My name is Ryan and my wife's name is Amanda. We are just two people with a lot in common that fell in love. Just so happens that one of those commonalities is Cystic Fibrosis (CF). We are breaking all the rules with being together, but love knows no boundaries.

Amanda and I met a few years ago at a CF walk kick-off event. Who knew our path's would cross again.

I was going through a rough time in January 2012, and a friend of ours mentioned to Amanda that I might need someone to talk to. Being the caring person she was, she contacted me to talk. We had an instant connection. She had previously gone through what I was going through, and was there to lend an ear. We started talking more frequently and feelings started developing. When we saw each other, there was a feeling that we had never felt before, almost like in the movies, love at "first" sight. Our friendship was stronger than ever and with feelings developing stronger and stronger every day, we decided that we had to make a hard decision. Being that we both had CF we had to decide where this relationship was going, did we want to take it to the next level, or was it going to end at just being friends. After a little time we both decided we were ready to take it to the next level. There was no turning back. We were in love, and took our last first kiss.

Thursday, July 26, 2012

Dehydrated...

Today has been a really longgg day. Starting with last night, i could not go to sleep. I finally passed out some time after 12, between IVs I could not go back to sleep, my ears were ringing louder than ever, and my mind was running. I have been having night sweats, headaches, and restless sleep since being home, but last night was the worst. At 4:30 Mugen woke me up to let him outside to go to the bathroom, which he doesn't normally do so my anxiety was bad and i was worried about him. 9am I felt like crap, was still having trouble sleeping, but needed to start my treatments, so i got up. Between doing treatments and IVs I tried to nap as much as possible. at 11:15 the home health nurse came to draw blood to check kidney functions. When she left, back to bed i went. Amanda called me worried at 12:20 because she hadn't heard from me all day and she knew i didn't feel good. I told her i had just been sleeping so she let me go back to sleep and asked if i would call her when i woke up. 3:10 i finally woke up, was just laying there, when Amanda texted me to see how i was feeling. Amazing how that worked, perfect timing. Still not feeling well I was starting to realize i was dehydrated. I went to the garage to realize that i only had 2 gatorades left. I drank a Gatorade and ate lunch, then started on the second Gatorade. Since i needed fluids, as soon as i finished the Gatorade i ran up to the store to get some more. Now doing treatments laying around hoping i feel better in the morning. Hopefully i get enough fluids in me that i don't feel so dehydrated.
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