A little about us...

My name is Ryan and my wife's name is Amanda. We are just two people with a lot in common that fell in love. Just so happens that one of those commonalities is Cystic Fibrosis (CF). We are breaking all the rules with being together, but love knows no boundaries.

Amanda and I met a few years ago at a CF walk kick-off event. Who knew our path's would cross again.

I was going through a rough time in January 2012, and a friend of ours mentioned to Amanda that I might need someone to talk to. Being the caring person she was, she contacted me to talk. We had an instant connection. She had previously gone through what I was going through, and was there to lend an ear. We started talking more frequently and feelings started developing. When we saw each other, there was a feeling that we had never felt before, almost like in the movies, love at "first" sight. Our friendship was stronger than ever and with feelings developing stronger and stronger every day, we decided that we had to make a hard decision. Being that we both had CF we had to decide where this relationship was going, did we want to take it to the next level, or was it going to end at just being friends. After a little time we both decided we were ready to take it to the next level. There was no turning back. We were in love, and took our last first kiss.

Thursday, July 26, 2012

Dehydrated...

Today has been a really longgg day. Starting with last night, i could not go to sleep. I finally passed out some time after 12, between IVs I could not go back to sleep, my ears were ringing louder than ever, and my mind was running. I have been having night sweats, headaches, and restless sleep since being home, but last night was the worst. At 4:30 Mugen woke me up to let him outside to go to the bathroom, which he doesn't normally do so my anxiety was bad and i was worried about him. 9am I felt like crap, was still having trouble sleeping, but needed to start my treatments, so i got up. Between doing treatments and IVs I tried to nap as much as possible. at 11:15 the home health nurse came to draw blood to check kidney functions. When she left, back to bed i went. Amanda called me worried at 12:20 because she hadn't heard from me all day and she knew i didn't feel good. I told her i had just been sleeping so she let me go back to sleep and asked if i would call her when i woke up. 3:10 i finally woke up, was just laying there, when Amanda texted me to see how i was feeling. Amazing how that worked, perfect timing. Still not feeling well I was starting to realize i was dehydrated. I went to the garage to realize that i only had 2 gatorades left. I drank a Gatorade and ate lunch, then started on the second Gatorade. Since i needed fluids, as soon as i finished the Gatorade i ran up to the store to get some more. Now doing treatments laying around hoping i feel better in the morning. Hopefully i get enough fluids in me that i don't feel so dehydrated.

Monday, July 23, 2012

Smooth Criminal

I love this picture, found it on Facebook and figured i'd repost it. I think it's funny how all these people think that guns should be outlawed so that no one else will get shot. Do they really think that would solve the problem? Are they really that oblivious? Guns themselves don't kill people. If a gun grew legs got up and shot someone i'd totally agree, outlaw them, but that isn't going to happen.

Enough ranting about this topic, there are plenty of things that are illegal out there that criminals still do and get away with. Outlawing guns will create more problems than fixing.

Sunday, July 22, 2012

Redbox Relax Day


Well it’s Sunday evening. The weekend home went by fast. Saturday was spent doing stuff around the house and babysitting Jude Bug. This morning woke up to do IVs and treatments at 9. Amanda went and picked us up some breakfast tacos and redbox movies so we could have a relaxing day. Then she filled the crockpot with roast, potatoes, and carrots to cook for the day. We watched 21 Jump Street first, it was pretty funny. Then Amanda’s dad aka Buddly came over with Taj to bring me the cheese curdz he picked up in Wisconsin and kept cold all the way back to Texas for me. We sat visited with them for a while, then they left to go eat lunch. We picked a couple snacks out to come start our second movie Safe House with Denzel Washington. 5 o’clock came around and it was time to start my next round of IVs. After I hooked up, back in bed I went. After finishing the movie Amanda went to check in the kitchen to check on the pot roast, ITS DONE! She took the meat, potatoes, and carrots out to make gravy out of the juices, opened the fridge to her surprise of no milk! Luckily our neighbor Nichole was home and let us have some so we could finish making our dinner. Now I’m laying in bed waiting for dinner to be ready. Even though it was a day of rest, I am still pretty tired. My eyes are heavy and I have a slight headache. Hopefully I will feel better in the morning.

Tuesday, July 10, 2012

Testing Waters

Well, I've decided to start a blog, not sure where it will go, but here goes nothing.

I am not sure what to blog about, or where to start, so I will start with an overview of the day and go from there.

I woke up at 6:25am to start my treatments and get ready for the day. I had to be at work early to open for a change. The mold allergies were bad due to the storm from yesterday, and after looking at the sky it did not look to be much better today.

The allergies were bad so starting off the day wasn't easy. My nose was stuffed up, I had sinus pressure, and my asthma kicked in. When I got to work, I immediately started sneezing, oh this can't be good. Between sneezing and being congested I somehow managed to do alright running the front desk.

When lunch rolled around I came home to eat and do a treatment. My lungs were tight, it was hard to breathe. I luckily had an appetite and was able to eat a sandwich and some chips. Did my albuterol treatment and back to work I went.

The afternoon went by fast, so it wasn't too bad. Around the time to leave it started raining. Luckily by the time I walked out the door it stopped, no getting soaked for me.

To sum things up, it was an alright day, even though the stress is building since I am going in for a tune-up next week.